Parents of children with medical complexity (CMC) encounter frequent safety challenges related to tube care in the home environment.
Common issues include supply shortages, device malfunction, and normalization of irregular care occurrences that may pose risks.
Parents develop personalized, innovative strategies to manage care safely but often do not communicate these challenges or solutions to healthcare teams.
Systemic, multipronged interventions are needed to support families and enhance safety in home-based care for CMC.
