Most Adolescents and Young Adults with Solid Tumours Reach Near-Normal 5-Year Survival Within Four Years — Implications for ‘Right to be Forgotten’ Policies

Highlights

– In a Netherlands population-based cohort (n = 71,973), the overall adolescent and young adult (AYA) solid tumour survivor population attained 5‑year conditional relative survival (CRS) >95% by four years after diagnosis.
– Several tumour types (germ cell/trophoblastic tumours, malignant melanoma, thyroid and skin carcinomas, neuroendocrine tumours) showed CRS >95% from diagnosis, indicating minimal excess mortality early on.
– Most other AYA solid tumours reached the 95% threshold within five to ten years, suggesting the potential to shorten insurance disclosure windows in Right to Be Forgotten (RTBF) policies for many AYAs but highlighting the need for tumour- and age-specific nuance.

Background

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